MS Brain and Spinal Cord Donation

MS Brain and Spinal Cord Donation

Scotland has one of the highest number of multiple sclerosis (MS) patients in the world. Although we have made great progress in understanding the cause of MS and how to better treat it, we still need to improve this understanding to help the next generation of MS patients even more.

One way of improving our knowledge is to carry out research using brain and spinal cord tissue from MS patients after they die.

Since January 2017, people with MS in Scotland have been given the opportunity to consider signing up for brain and spinal cord donation in the event of their death. The programme has been well received by the MS community and people continue to sign up.

Six people have donated to the MS Brain Bank since 2017 and 41 people have consented to donation when they die.

Here are some of the comments that patients and their families have made:

"I'm not going to need it where I'm going."

"I'm just going to be burnt anyway, so if you can make use of me then why not!"

"I've always wanted to travel abroad, so if some of me can go to the States, then that's great!"

"I want to make sure everything is in order for my family before I die."

"It was really important to him that something good would come out of his death."

"This is so important for finding a cure for MS so others don't have to suffer the way he did."

Please feel free to get in touch with the team if you have any questions or would like more information about this invaluable research resource.

Tracey Millar

Research Nurse Manager

MRC Edinburgh Brain Bank

0131 465 9522
www.ed.ac.uk/edinburgh-brain-tissue-bank

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Funding Acknowledgements

This project is funded by the Medical Research Council and supported by the Anne Rowling Regenerative Neurology Clinic, and the Multiple Sclerosis Society.