Motor neurone disease (MND) clinic
Our team runs a fortnightly multi-disciplinary MND specialist clinic that integrates care with current research.
On the first visit, you will meet one of the two neurologists and one of our nurse specialists. They will discuss the diagnosis, help decide what your needs are, and arrange any further tests required.
You will have access to various supportive therapists, including physiotherapy, occupational therapy and speech and language therapy, as well as more specialised services such as ventilatory support.
Subsequent follow-up visits can be planned after the initial consultation.
We very much encourage you to bring your partner and/or close family to the consultation, and recommend that you think in advance about any questions you might like to ask.
Clinical research opportunities
MND patients will be given the opportunity to take part in clinical research. Participation in research is completely voluntary and will not affect patient care.
MND research is conducted in collaboration with the Euan MacDonald Centre for MND Research, a Scotland-wide group of approximately 30 researchers undertaking clinical research and laboratory research into MND. Clinical research projects include the MND Register, the voicebanking project and the Edinburgh Cognitive ALS Screen (ECAS).
MND research nurse: Laura Stephenson
Speech and language therapist: Dr Phillipa Rewaj