Rowling CARE (Clinical Audit Research Evaluation)

Participate and shape future research at the Anne Rowling Clinic

 

 

Rowling-CARE is an electronic record of healthcare data (for example, this information includes how your condition affects you, when you were diagnosed, what investigations were carried out and current management) that allows us to conduct research, identify research projects that are relevant to individuals, and to identify people who can help shape future research. Such a collection of data is called a registry.

Why is it important?

Every year at the Anne Rowling Clinic we make thousands of clinical contacts. We strive to deliver the best care possible, and in the delivery of that routine care we generate a wealth of data about the people we see and the conditions they have. Currently we don't use any of that data for research.

What could we learn?

Rowling CARE data will allow us to conduct research, identify research projects that are relevant to individuals, and to identify people who can help shape future research.

Am I eligible?

You will be eligible to take part if you attend the clinic as a patient or are relative/carer of a patient who attends the Anne Rowling Clinic. 

How can I take part and what is involved?

You can take part by completing an easy sign-up form either electronically, by post or in person at the Clinic. All the information we use for Rowling-CARE is anonymised and adheres to the data protection act and has been ethically approved.

Do I have to take part?

No, this is completely voluntary, and if you choose not to join Rowling-CARE this will not have any influence on your clinical care. You are also free to withdraw from the register at any time without providing a reason.

Find out more about Rowling-CARE

Please ask at reception for more information, we also have dedicated members of staff in the Clinic who can talk to you more about Rowling-CARE and help you sign-up if you need help.

You can also find out more about Rowling-CARE by visiting: www.Rowling-CARE.org.uk

Rowling CARE documentation:

Participant information sheet

Relative/Carer information sheet